When you are in a PUBLIC waiting room, even if you are sleeping in that waiting room, and you have been in the Hospital with a loved one please leave your shoes on. When you take them off you make the entire waiting room that you have to share with other people like feet. Thankfully they let me sleep on a recliner in J’s room.
Now on to the update.
They are backing down on the sedation, which is a good thing, last night I kissed her cheek and told her I loved her and she moved her head. FIrst time she has responded to me she also opened her eyes when the respitory therapist did some suctioning. They tell me she won’t remember these things but that was a huge deal for me.
J is maintaining her vital signs on her own which is a good thing. They told me last night that they don’t want to give me false hope, they also said that they may have to give her stuff back if the levels change and they want me to know they can change at any time.
There is still some confusion as to this mass on her adrenal gland. I know that the MICU dr wants it removed, at first they were saying get her okay and schedule it outpatient, now they are saying biopsy and get it out of there now so we are in a holding patter, We are in a holding pattern on so many things.
FInally a top Dr from DC has been checkin on her thanks to the team of people at her school. We are so appreciative for all the care and support coming from that direction.
I am going to get out of the hospital for a bit and get a much needed shower today. I am sure that everyone will thank me the sponge baths are just not cutting it.
So for those that like to have a quick recap
- VItals Good
- Responsiveness better
- Situation still very critical
- Aaron gets a shower
Thanks for the prayers and concerns